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Is Endometriosis the Reason For Your Pain?

What is Endometriosis

Endometriosis, pronounced, “end-o-me-tree-o-sis” can affect girls and women of all ages. It is estimated that between 2-10% of American women of childbearing age have endometriosis–~190 million women worldwide. The cause of endometriosis is still unknown.  In endometriosis, tissue that looks and acts like tissue lining the inside the uterus (shed monthly as menstruation) is found outside the uterus, usually inside the abdominal cavity.  Endometriosis will usually go away after menopause. 

Symptoms

No symptoms at all

Pelvic pain (most common in women with symptoms). Pain usually gets worse over time and lasts longer over time. The amount of pain is not always related to the severity of the disease.

  • –painful periods
  • –chronic pelvic pain
  • –pain during and/or after sexual intercourse
  • –painful bowel movements
  • –painful urination

Fatigue

Depression or anxiety

Abdominal bloating and nausea

Ovarian cysts that can be large and/or persistent

About 20% of women with endometriosis will have problems with fertility

Very rarely endometriosis can be associated with reproductive system cancers

Diagnosis

There is no single diagnostic test for endometriosis. Diagnosis can be made based on 

your symptom history

findings at the time of surgery

response to a treatment

Treatment

Hormonal suppression

  •      –Hormones (pills, patches or rings, progesterone implant)
  •      –Hormonal IUD
  •      –Injectable medications Leuprolide acetate
  •      –Oral hormonal suppressing medication Elagolix (brand name Orlissa)

Acupuncture

Pelvic floor physical therapy

Surgery

Destroy or remove endometriosis implants (usually requires medication afterward for continued treatment)

Hysterectomy with removal of ovaries

Mild symptoms may be treated with over the counter pain medicines as needed

Suspect you have Endometriosis?

What You Can Do

Talking to Your Provider

  1. Keep a symptom journal. This can be key to recognizing the pattern of symptoms

  2. Speak up. Don’t just live with the pain

  3. Learn more

  4. If you have persistent pain contact your health care provider

Questions to Ask

  1. What are the possible reasons for my pain?

  2. How will you tell which one of those is my diagnosis?

  3. What are the pros and cons of surgery to diagnose/treat my symptoms?

  4. What are the pros and cons of medication to diagnose/manage my symptoms?

  5. Can I resolve these symptoms with lifestyle changes (diet, exercise, therapies?)

  6. What are treatment options for my pain?

 

What to Expect

At your first few visits you can expect to:

  1. review your symptoms in detail including questions like when they first started, when you notice they are present and what makes things feel better or worse 

  2. talk about a list of conditions that are known to cause similar complaints

  3. discuss options for ways to know what is causing your symptoms. This could include lab tests, radiology images like ultrasound, surgery or a trial on a medication

  4. hear about making a plan for treating your symptom over time (even if the plan is not started on the same day)

Endometriosis is not the only reasons that women can have pelvic pain. Talking to your physician is important to getting the right diagnosis and treatment.

What is Endometriosis

Endometriosis, pronounced, “end-o-me-tree-o-sis” can affect girls and women of all ages. It is estimated that between 2-10% of American women of childbearing age have endometriosis–~190 million women worldwide. The cause of endometriosis is still unknown.  In endometriosis, tissue that looks and acts like tissue lining the inside the uterus (shed monthly as menstruation) is found outside the uterus, usually inside the abdominal cavity.  Endometriosis will usually go away after menopause. 

Symptoms

No symptoms at all

Pelvic pain (most common in women with symptoms). Pain usually gets worse over time and lasts longer over time. The amount of pain is not always related to the severity of the disease.

  • –painful periods
  • –chronic pelvic pain
  • –pain during and/or after sexual intercourse
  • –painful bowel movements
  • –painful urination

Fatigue

Depression or anxiety

Abdominal bloating and nausea

Ovarian cysts that can be large and/or persistent

About 20% of women with endometriosis will have problems with fertility

Very rarely endometriosis can be associated with reproductive system cancers

Symptoms

No symptoms at all

Pelvic pain (most common in women with symptoms). Pain usually gets worse over time and lasts longer over time. The amount of pain is not always related to the severity of the disease.

  • –painful periods
  • –chronic pelvic pain
  • –pain during and/or after sexual intercourse
  • –painful bowel movements
  • –painful urination

 

Diagnosis

There is no single diagnostic test for endometriosis

Diagnosis can be made based on 

your symptom history

findings at the time of surgery

response to a treatment

Treatment

Hormonal suppression

  •      –Hormones (pills, patches or rings, progesterone implant)
  •      –Hormonal IUD
  •      –Injectable medications Leuprolide acetate
  •      –Oral hormonal suppressing medication Elagolix (brand name Orlissa)

Acupuncture

Pelvic floor physical therapy

Surgery

Destroy or remove endometriosis implants (usually requires medication afterward for continued treatment)

Hysterectomy with removal of ovaries

Mild symptoms may be treated with over the counter pain medicines as needed

Suspect you have Endometriosis?

What You Can Do

  1. Keep a symptom journal. This can be key to recognizing the pattern of symptoms

  2. Speak up. Don’t just live with the pain

  3. Learn more

  4. If you have persistent pain contact your health care provider

Questions to Ask

  1. What are the possible reasons for my pain?

  2. How will you tell which one of those is my diagnosis?

  3. What are the pros and cons of surgery to diagnose/treat my symptoms?

  4. What are the pros and cons of medication to diagnose/manage my symptoms?

  5. Can I resolve these symptoms with lifestyle changes (diet, exercise, therapies?)

  6. What are treatment options for my pain?

 

What to Expect

At your first few visits you can expect to:

  1. review your symptoms in detail including questions like when they first started, when you notice they are present and what makes things feel better or worse 

  2. talk about a list of conditions that are known to cause similar complaints

  3. discuss options for ways to know what is causing your symptoms. This could include lab tests, radiology images like ultrasound, surgery or a trial on a medication

  4. hear about making a plan for treating your symptom over time (even if the plan is not started on the same day)

Endometriosis is not the only reasons that women can have pelvic pain. Talking to your physician is important to getting the right diagnosis and treatment.

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